My name is Caitlin and my daughter Calli was diagnosed in 2020 with Kawasaki Disease. As if 2020 wasn’t already crazy enough with the unknown, this was a whole other level of scary.
Calli was originally misdiagnosed with Scarlett Fever but after 5 days I knew something wasn’t right. She was then admitted to Townsville University Hospital and after 3 days of testing and going back and forward between doctors across the state, she received her diagnosis and was treated with IVIG. She then spent months on blood thinners and after 12 months, she was cleared of any aneurysms and discharged from the cardiologist
I will never forget how scared I was sitting beside my daughter’s hospital bed. So many unknowns and so many questions racing through my head. I searched online and found the Kawasaki Disease Australian Network on Facebook and was so grateful to know I had so much support and information from other parents who knew what I was going through, right there at my fingertip.
The KD Australia Facebook page and group is so vital and so when I saw them appealing for more volunteers and committee members I knew I had to get involved.
